AI and Parkinson’s – My hopes for AI
There are many risks and challenges ahead of us from the world of (AI) Artificial Intelligence and it will undoubtedly have a major impact on the lives of our children and their kids. On the positive side, from what I have seen, there is a real chance that AI will bring a massive benefit to […]
YEH – It’s official – My Garmin told me I am actually 2 years younger
I am coming up to 5 years with Parkinson’s, and this morning I received a notification from my Garmin saying I had won back another year and my fitness age had come down to 47.5 instead of the 49.5 I am. I actually didn’t know about this feature – but if my Garmin watch says […]
Vyalev / Produadopa Pump – some upbeat news hopefully
The last few days with cellulitis and a second infection from the Vyalev / Produadopa Pump have not been much fun, but today I learned some interesting information that gives me a lot more hope. I had a really interesting conversation with the local Abbvie patient experience and medical team, and I heard three things […]
A Moment to Say Thanks
A moment to Say Thanks – I admit it, at the moment I am a little bit grumpy. PD, a painful infection, and yesterday lots of pain from the cannula site of the Vyalev / Produadopa pump led me to change the cannula twice. Despite this, the overwhelming thought I have is one of thanks. […]
Parkinson’s – it is certainly not boring
This disease is popularly known as the ‘Disease is the gift that keeps on taking’…but one thing you can say for sure is that it is not boring. Whatever you plan for, this disease has other plans….fairly constantly. For someone who is a bit of a control freak (my wife and kids would add their […]
Produadopa / Vyalev issues – A second infection and blood spirt….not the dream life but all part of the fun
Produadopa /Vyalev issues – I was warned very clearly by my neurologist, the pharmaceutical team, and all the paperwork that a side effect of the Vyalev/Produadopa pump would be challenges with the area of the stomach where I daily inject a liquid form of Levadopa through a self-inserted cannula. Despite taking the strictest measures—gloves, alcohol […]
