My PSP Battle – My first Poem (and no AI in its writing)

Getting your Trinity Audio player ready...

I had a little time out in the sun and by the sea with my wife and son and was feeling creative. I have put it a bit on the line and written a poem with no (and I mean no) AI involvement in its creation (although it helped me created the photo at the very end which you see above).

I focused on the intent and meaning as opposed to a structure, after all poetry has never been my thing but I found meaning in this.

I am interested in your honest thoughts (not necessarily from a grammar or too technical a perspective)

 

My battle with PSP:

 

Though I stand my ground and try to fight

It takes its toll both day and night.

Despite the pain, despite the progression,

I’m trying to avoid anger and aggression.

 

This illness hurts body and soul

To keep it at bay, that’s my goal,

Not for me. Not forever

For my loved ones, I endeavour.

 

People say ‘attitude’ is key

They’re right, of course… but for me…

Support from my loved ones is the one thing

That together with faith, help me to cling…

To  life, precious, and of real meaning.

Despite this disease, which to date, has no healing.

 

I’ve no idea where this journey will end,

But at each stage, I’ll try to bend,

With the blows, that this illness metes out,

Like the tree in the wind, resilient and stout.

 

I am in G-d’s hands, that I know…

He charts the course by which I’ll go.

It’s a terrible thing, PSP

But I’ll make the most of life… you’ll see


On the Prose side I was surprised to see this monthly summary from the dictation app I use – it is a lot of writing

Click on the book above or below to find my book on Amazon - Available in all Amazon stores on electronic and paperback version

Hello! I am Ben Lazarus

Originally diagnozed with Parkinson’s it has sadly turned into PSP a more aggressive cousin. I am 50 and have recently retired but enough of the sob story – I am a truly blessed person who would not swap with anyone on the planet, principally because I have the best wife and kids in the world (I am of course completely objective :-)). Anyway I am recording via the Blog my journey as therapy to myself, possibly to give a glimpse into my life for others who deal with similar situations and of course those who know me.

Use the QR code or click on it to get a link to the Whatsapp Group that posts updates I hope this is helpful in some way

Leave a Reply

Discover more from Living with and fighting PSP

Subscribe now to keep reading and get access to the full archive.

Continue reading