No 100% Certainty Until Autopsy: PSP and Its Shared Challenge with Parkinson’s, Alzheimer’s, ALS, MS and More
About nine months ago when I was diagnosed as having “appears to be PSP”, the phrase “appears to be” was both a lifeline and a frustration. I held on to the hope that it could be something less invasive and less devastating. At the same time, it was annoying because after five years of thinking […]
Apathy: “He Is Not My Husband Anymore” – A Patient’s View
Apathy seems to be a symptom discussed by caregivers more than most, and they often talk about the loneliness they feel as a result. Yet, on first glance, I didn’t believe this could be a real symptom. It sounded made up, but as I reflect on specific instances and on my general feeling, I can […]
