Weirdest 24 Hours EVER: The Utter Absurdity of Living with PSP (Feeding Tube?, Terrified!, Toy Cars, Food Success, Toenail)
Yesterday was one for the books – a day so surreal it felt like a dark British comedy. If you live with PSP (Progressive Supranuclear Palsy), you’ll know that absurdity is part of the package. I’m not diving deep into every issue today (each deserves its own post), but I want to capture the sheer […]
Food Glorious Food – Getting used to change (some positive) at breakneck speed
Food Glorious Food – I thought my career was action-packed and fast-moving, but the last few months of my personal life have been a rollercoaster that has simply left it miles behind. I am on a journey which has such frequent turns and changes that sometimes incredibly significant changes – in a normal life – […]
24 Hours On: We Have a Clear Plan, Need a New School Bag, and Definitely NO Air Bag
Before I talk about the very positive action we’ve taken after a terrible fall about 24 hours ago, I have to share two funny stories that kept us laughing yesterday. I have my daughter’s permission to tell the first one, and the second one speaks for itself. Sometimes the strangest things help ease enormous stress. […]
ONE SPLIT SECOND – A STRANGE MOMENT
It was probably much less than a second, maybe a nanosecond, or whatever the right term is -but it was crystal clear. Don’t worry, I didn’t see the Gates of anything or flames or tunnels. It wasn’t that kind of moment. But it was life changing. For days, a specific thought has been circling in […]
