Produadopa / Vyalev issues – A second infection and blood spirt….not the dream life but all part of the fun
Produadopa /Vyalev issues – I was warned very clearly by my neurologist, the pharmaceutical team, and all the paperwork that a side effect of the Vyalev/Produadopa pump would be challenges with the area of the stomach where I daily inject a liquid form of Levadopa through a self-inserted cannula. Despite taking the strictest measures—gloves, alcohol […]
Parkinson’s – positives from my journey
Positives – Without PD would I ever have run 10k, done yoga or written a blog post like this – NEVER. Just a shame I had to get PD to do those things.
You Know You Have a Sleep Problem When…
When you wake up at 11pm and start writing a post about having a sleep problem, you know it’s serious. For a very long time now—pretty much since being diagnosed with Parkinson’s—I’ve had a serious sleep problem. Until recently, it was just one of many issues on my list of priorities. Thanks to the […]
אתה יודע שיש לך בעיית שינה כש…
Sleep and its massive impact on PD
PD Silver Lining – yes there is
Is there a silver lining to the diagnosis? I know this is strange to write given my recent blog post about a shorter life expectancy and my general mood at the moment which is less than 100% but this research paper reminded me of an important fact, something I should encourage myself to listen to […]
Life Expectancy With PD – Redoubling my efforts
Life expectancy with PD – latest episode of ‘2 Parkies in a Pod’ addressed the impact of PD on lifespan. Despite the shock, the information fuels determination.
Update June ’23: staying positive is hard work and takes effort but is worth it
Before I start in earnest the one overwhelming lesson I have learned this period is that being a fool and ignoring all advice from the professionals is a terrible idea…but I will come back to this…. When I came to write this update two fundamental questions crossed my mind…1) Why and 2) What tone to […]
March 2023 – PD…short update…choking, 40 becomes 20 and I really am British
I have started to feel that this blog is a little self-absorbing/self-indulgent and I have debated whether to keep it going, especially with all the other things going on in the country and the world which are all more fundamental. However, based on feedback from others, and the help this has been to me to […]
פרקינסון – הכל בסדר! היה מפחיד אבל באמת שיכל להיות הרבה יותר גרוע… אבל זה לא, תודה לאל
מאז שכתבתי בפעם האחרונה לפני כמעט 6 חודשים, הדברים היו טובים, נהדרים למעשה, למעט כמה שבועות מלאי אימה שהסתיימו למרבה המזל עם חדשות טובות. כמו תמיד, מטרת כתיבת הבלוג הזה היא לטובתי האישית – תיעוד של המסע – ולכן הייתי ואמשיך להיות כנה לגבי החוויות שלי. אז כמו תמיד, הדברים החיוביים…וכמה סיפורים מעניינים. באופן כללי […]
Parkinson’s – all good but a scare – it really could have been a lot worse…but it isn’t thankfully (TG)
Since I last wrote nearly 6 months ago, things have been good, great in fact, except for a couple of very terror filled weeks which thankfully ended with good news. As always, this is as much for my benefit – as a record of the journey – and therefore I have been and will continue […]
Year 2 into 3…PD has not been the key thing :-)
It has been many months since I last posted so I thought I would drop a short update, especially as a few people have asked. I will probably regret this because when I say that things are going well, the next day I feel the opposite. So I guess tomorrow won’t be a great day […]
Year 1 of PD – Glass Half Full
I decided to keep a journal of my journey – it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against […]
