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  • The PSP Decision Map
  • I’ve Just Been Diagnosed with PSP. What Do I Do Now?
  • Home
  • Intro – My Journey
  • English Blogs
  • עברית
  • PSP: Understanding Symptoms and Stages
  • My Publications/Articles/Books
    • My Books (Amazon/Kindle)
    • Unetaneh Tokef/ונתנה תקף
    • Real Role Models – My Book in Progress
    • Being a Friend to Someone Who Is Dying
    • Navigating a Terminal Illness – A Patient’s view for Caregivers
    • PSALMS/TEHILLIM GUIDE
    • Living the Tension: Finding Beauty in a Complex World (PDF OF MANUSCRIPT)
  • The PSP Decision Map
  • I’ve Just Been Diagnosed with PSP. What Do I Do Now?

Tag: #feedingtube

Weirdest 24 Hours EVER: The Utter Absurdity of Living with PSP (Feeding Tube?, Terrified!, Toy Cars, Food Success, Toenail)

Yesterday was one for the books – a day so surreal it felt like a dark British comedy. If you live with PSP (Progressive Supranuclear Palsy), you’ll know that absurdity is part of the package. I’m not diving deep into every issue today (each deserves its own post), but I want to capture the sheer […]

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