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Living Life with PSP
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  • The PSP Decision Map
  • I’ve Just Been Diagnosed with PSP. What Do I Do Now?
  • Home
  • Intro – My Journey
  • English Blogs
  • עברית
  • PSP: Understanding Symptoms and Stages
  • My Publications/Articles/Books
    • My Books (Amazon/Kindle)
    • Unetaneh Tokef/ונתנה תקף
    • Real Role Models – My Book in Progress
    • Being a Friend to Someone Who Is Dying
    • Navigating a Terminal Illness – A Patient’s view for Caregivers
    • PSALMS/TEHILLIM GUIDE
    • Living the Tension: Finding Beauty in a Complex World (PDF OF MANUSCRIPT)
  • The PSP Decision Map
  • I’ve Just Been Diagnosed with PSP. What Do I Do Now?

Tag: #No 100%

No 100% Certainty Until Autopsy: PSP and Its Shared Challenge with Parkinson’s, Alzheimer’s, ALS, MS and More

About nine months ago when I was diagnosed as having “appears to be PSP”, the phrase “appears to be” was both a lifeline and a frustration. I held on to the hope that it could be something less invasive and less devastating. At the same time, it was annoying because after five years of thinking […]

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