Misdiagnosis – The Emotional Cost Biomarkers Could Spare
From theoretical science to the real world of emotion and consequences, misdiagnosis in neurodegenerative diseases like Progressive Supranuclear Palsy (PSP) carries a heavy toll. Yesterday, I shared a scientific perspective on biomarkers. Today, I’m speaking from the heart about my journey and the urgent need for change. The Rollercoaster of Misdiagnosis I often make it […]
€35, Hours of Pivoting, and My Deep Dive into the Transition from Parkinson’s to PSP-P
I’m not a scientist, a neurologist, or a diagnostic expert. I’m a patient, someone living through the confusing transition from a diagnosis of Parkinson’s disease (PD) to a diagnosis of Progressive Supranuclear Palsy-Parkinsonism (PSP-P). And to be honest, it’s been disorienting, albeit never a dull moment 🙂 It’s been a journey filled with retiring, giving […]
