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Living Life with PSP
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    • PSALMS/TEHILLIM GUIDE
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  • The PSP Decision Map
  • I’ve Just Been Diagnosed with PSP. What Do I Do Now?
  • Home
  • Intro – My Journey
  • English Blogs
  • עברית
  • PSP: Understanding Symptoms and Stages
  • My Publications/Articles/Books
    • My Books (Amazon/Kindle)
    • Unetaneh Tokef/ונתנה תקף
    • Real Role Models – My Book in Progress
    • Being a Friend to Someone Who Is Dying
    • Navigating a Terminal Illness – A Patient’s view for Caregivers
    • PSALMS/TEHILLIM GUIDE
    • Living the Tension: Finding Beauty in a Complex World (PDF OF MANUSCRIPT)
  • The PSP Decision Map
  • I’ve Just Been Diagnosed with PSP. What Do I Do Now?

Tag: #PSPA

The PSPA Report: Why the Focus on Misdiagnosis Matters

I have been reading the latest PSPA (PSP Association) report and highly recommend it: https://www.pspassociation.org.uk/pspa-survey-report-2025/ One of its most important findings is something I have written about before, but which the PSPA addresses with far greater authority and scale: misdiagnosis. According to the report, 58% of people living with PSP or CBD were initially diagnosed […]

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