PSP: Unsung Champions

[Introductory Note: I’m sharing this because I feel a surge of positivity. Positivity is relative, I know. Some might find this tough to read, but it’s important for those around PSP to acknowledge the realities faced by those living with disease – and related conditions – and to recognize the remarkable strength I see in […]

Quality of Life – I Challenge us to Look at more Positively

Quality of Life (QoL) is a term much used in the world of PSP, but I think many researchers, medical experts, and those involved with PSP frame it too negatively. I’m going to challenge that thinking. In a disease with no cure or treatment, QoL is the only real focus. Other illnesses chase treatment, rehab, […]