PSP: Unsung Champions
[Introductory Note: I’m sharing this because I feel a surge of positivity. Positivity is relative, I know. Some might find this tough to read, but it’s important for those around PSP to acknowledge the realities faced by those living with disease – and related conditions – and to recognize the remarkable strength I see in […]
Shopping for Wheels: Choosing the Right Mobility Aid :-)
Before buying a car (set of wheels :-)), most of us dive into research, looking for speed, style, versatility, looks, that elusive X factor, and of course, price, deals, and features. We each have our individual systems. I’ve always loved speed, but my condition has forced me to slow down. Still, I half-agree with Jeremy […]
Misdiagnosis – The Emotional Cost Biomarkers Could Spare
From theoretical science to the real world of emotion and consequences, misdiagnosis in neurodegenerative diseases like Progressive Supranuclear Palsy (PSP) carries a heavy toll. Yesterday, I shared a scientific perspective on biomarkers. Today, I’m speaking from the heart about my journey and the urgent need for change. The Rollercoaster of Misdiagnosis I often make it […]
