An indulgance

The simple fact is that we are at war. This is not a political statement—just reality. I’m effectively stuck at home because I need to stay close to the safe room. With my balance and walking difficulties, I must remain nearby at all times.

It feels incredibly indulgent to write about PSP right now, when there are far greater issues affecting me, my children, my country, and this region. So I’ll keep this brief.

War helps no one—except perhaps defense industry executives. For me personally, the stress levels are significantly higher, especially as we await incoming ballistic missiles. Sleep is even harder to come by, and the stress compounds.

Any semblance of routine has been shattered—physiotherapy and personal training sessions are on hold.

When the time is right, I’ll dedicate a post to mental health. But now is not that time.

Fighting PSP remains high on my agenda. I continue to do what I can: exercising, keeping my brain active, managing stress, and staying as healthy as possible. But the fear of what lies ahead hit me hard during a call with a client. When he asked why I was retiring, I said, “PSP.” As I began my usual explanation—since most people don’t know what it is—he interrupted: “Oh s**t, a friend had it. I’m so, so sorry to hear that.” He knew.

I’ve stayed off the pump and returned to pills, which seems to be working better for me at the moment.

Retirement officially begins in just over a week, but in reality, it’s already here. I’m eternally grateful to my colleagues for helping me transition. If I were still worrying about the office, projects, and my team right now, I think I’d be far sicker than I am. I truly thank them for their support.

Wishing everyone safety and security.

Hello! I am Ben Lazarus

Originally diagnozed with Parkinson’s it has sadly turned into PSP a more aggressive cousin. I am 50 and have recently retired but enough of the sob story – I am a truly blessed person who would not swap with anyone on the planet, principally because I have the best wife and kids in the world (I am of course completely objective :-)). Anyway I am recording via the Blog my journey as therapy to myself, possibly to give a glimpse into my life for others who deal with similar situations and of course those who know me.

Use the QR code or click on it to get a link to the Whatsapp Group that posts updates I hope this is helpful in some way

One Response

  1. You’ll never walk alone!! That’s is the best!! I’m keeping on walking too Ben! I won’t ever give up. Fighting hard to keep moving on my own. I have had PSP for 5 years and I am staying positive and keeping going. Balance is off, so moving slower now, but still trying to get in 6 to 8000 steps per day. Still climbing stairs too. Keep going Ben and stay positive!!

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