PSP: Progressively Stealing My Vision
Progressive is the right word for this disease, and also a misleading one. It suggests something orderly, something you can see coming. In reality, PSP creeps. It does not give you a single moment of reckoning. It gives you a thousand small ones, each easy to dismiss, until one day the accumulation becomes impossible to […]
The Eyes Have It
In the symptom race that is PSP, my eyes are pulling ahead of balance and slowness. In fact, they’ve become a real concern. I remember it as clear as day, funny and shocking at the same time. When I was first diagnosed with “Parkinsonism” in 2020, I went to the eye clinic for a half-day […]
Kindness, Wheelchairs, and Owning My Mistakes
Life has a way of teaching you to appreciate the small moments that carry immense weight. Lately, I’ve been overwhelmed—in the best way—by the kindness of others. From practical favors to heartfelt gestures, these “little things” have made a world of difference in my life with PSP. One unexpected source of joy? My wheelchairs. Yes, […]
Sad to Be Right: ‘Proof’ that Stopping Driving Was Right
For months, I’ve struggled with my eyes, and although it is Sad to Be Right, stopping driving was absolutely right (and overdue). Other people should trust their instincts too, both with driving and in potentially avoiding unnecessary delay in diagnosis and treatment of health considerations. I’ve dealt with blurred vision, occasional double vision, and eyes […]
Writing blogs is my way of talking to people – I see it now
Call to action for me!!!!!! It has taken me far too long to fully grasp a major symptom that I am struggling to deal with and that has, without me fully realizing it, changed relationships and brought me to love writing all the more. It has been raised a couple of times by people and […]
