For months, I’ve struggled with my eyes, and although it is Sad to Be Right, stopping driving was absolutely right (and overdue). Other people should trust their instincts too, both with driving and in potentially avoiding unnecessary delay in diagnosis and treatment of health considerations.
I’ve dealt with blurred vision, occasional double vision, and eyes that are constantly tired and teary. For that reason, I voluntarily chose to stop driving myself. At times, I doubted myself, blaming my glasses or exhaustion, endlessly squinting and adjusting my lenses. As a result, it took too long, but I’m grateful I saw sense.
The progression of Progressive Supranuclear Palsy (PSP) is well-documented, particularly its impact on eye degeneration. The Mayo Clinic notes: “An inability to aim your eyes properly. People with Progressive Supranuclear Palsy may not be able to look downward. Or they may experience blurring and double vision. Not being able to focus their eyes can make some people spill food. They also may appear disinterested in conversation because of lack of eye contact.”
These symptoms hit home, but admitting it was tough. I didn’t want to face it, others suggested alternative explanations, and I questioned my instincts until they were confirmed. Eventually, I took myself off the road, but until yesterday, I was not fully prepared to admit it.
Yesterday’s appointment with the Neuro-Ophthalmologist proved me right. At the same eye clinic where I was tested five years ago on May 26, 2020, they conducted several tests, including one on the same machine—a 24/2 test. The chart showed a significant decline in my visual field, confirming my fears. You can see it for yourself, and I don’t think you need to be a scientist to spot the message.
There’s a bittersweet sense of satisfaction in knowing my instincts were right, but it’s overshadowed by the reality of my condition. We’re taking action with eye drops to soothe my symptoms and Prism Prescription Glasses for reading, which will help immensely rather than just worrying. However, there seems to be no specific treatment, as it’s a neurological issue, not an eye condition.
Why share this? First, it’s part of my PSP journey, and my eyes are central to that story. Second, accepting the truth is crucial for coping. Most importantly, my experience carries a lesson for others. My choice to stop driving is a wake-up call. Many have told me it resonated, as they know people with similar issues who still drive. My failing vision isn’t just a feeling—it’s a reality that could mean the difference between safe driving and a tragedy.
If you feel something’s off, trust your gut, unless you’re prone to hypochondria. Ignoring symptoms delays treatment for neurological or other serious conditions. Time is precious—get it checked.
Now that my instincts are proven right, I can cherish the vision I still have. Every morning, my prayers include a list of blessings. One, which I’ve never said with much intensity, thanks G-d for “giving sight to the blind.” As a person of faith, this reminds me sight is a gift, not to be taken for granted. This experience deepens my gratitude.
I’m truly grateful for all the beautiful blessings I have and wouldn’t want to be anywhere or anyone else. My hope is that others heed their instincts and make safe choices—especially behind the wheel.
