‘Appears to be PSP’ – Actually a positive thing and a call to action
One week into the ‘Appears to be PSP’ diagnosis and I am coming through the denial and grieving stage and am actually seeing it bizarrely as a positive moment. Don’t worry, I am genuinely not insane…please take the time to read and hear me. I must say upfront that I can only talk here in […]
Driving – Letting Go of the Wheel: Finding Hope Beyond My Love for Driving
Driving is something anyone who knows me will know that I simply love—or should I say loved. I truly loved it, however rational or irrational. The freedom, the independence, the acceleration, the control—whatever it was, I loved it. Some of my most favorite moments have come in the car. Sadly, this has now become part […]
4-4-4 – Learning to Breathe like the Navy SEALs or like me 😀
4-4-4 – Learning to Breathe like the Navy SEALs or like me 😀. What t do I mean by learning to breathe? Let me give some context. Life can be overwhelming. More and more gets put on my shoulders with challenges and tests coming from every direction. Recently, it has felt simply staggering. Health issues […]
A Moment to Say Thanks
A moment to Say Thanks – I admit it, at the moment I am a little bit grumpy. PD, a painful infection, and yesterday lots of pain from the cannula site of the Vyalev / Produadopa pump led me to change the cannula twice. Despite this, the overwhelming thought I have is one of thanks. […]
Parkinson’s – positives from my journey
Positives – Without PD would I ever have run 10k, done yoga or written a blog post like this – NEVER. Just a shame I had to get PD to do those things.
“Be positive” The most annoying words but yet the key…my perspective
I have tried to write this 15 times… it is really hard to articulate, but it is something I have an overwhelming desire to talk about. It is something I think about so much and want to get it off my chest – you can choose to read, choose to delete, choose to disagree. It […]
You Know You Have a Sleep Problem When…
When you wake up at 11pm and start writing a post about having a sleep problem, you know it’s serious. For a very long time now—pretty much since being diagnosed with Parkinson’s—I’ve had a serious sleep problem. Until recently, it was just one of many issues on my list of priorities. Thanks to the […]
אתה יודע שיש לך בעיית שינה כש…
Sleep and its massive impact on PD
Pills to pump….a big but hopefully really positive step forward
I decided to write this post after an important ‘chance’ encounter this week. Some would call it a coincidence – I would call it divinely inspired – and it is the third or fourth time something similar has happened. Additionally, I want to share a significant change in my treatment that I hope will […]
Fear – A New But Familiar Journey…time To Fight Back
The author discusses their recent struggles with Parkinson’s disease, detailing physical and emotional challenges, but also expressing determination to fight on.
5k at 3am indoors
Ran a slow, monotonous 5k indoors at 3am due to Parkinson’s Disease symptoms. Medication has positive impact but sleep troubles persist. Prefers indoor running over outdoor due to temperature. Striving to continue daily exercise.
PD Silver Lining – yes there is
Is there a silver lining to the diagnosis? I know this is strange to write given my recent blog post about a shorter life expectancy and my general mood at the moment which is less than 100% but this research paper reminded me of an important fact, something I should encourage myself to listen to […]
Life Expectancy With PD – Redoubling my efforts
Life expectancy with PD – latest episode of ‘2 Parkies in a Pod’ addressed the impact of PD on lifespan. Despite the shock, the information fuels determination.
My thoughts on Jeremy Paxman’s statement that “having PD made you wish you’d never been born”
As an end post to the mini awareness project I have been running around the April 11th Worldwide Parkinson’s Awareness Day, I wanted to address what has probably been the most outspoken element of the coverage. The story that garnered probably the most publicity was a quote from the famous British news and TV personality […]
Back to running & learning to cope with acute stress
As I describe in another blogsite the last few months have been sheer terror especially as a parent whose son is at war. Today was a major milestone in my fightback as I ran my first 5k for 3 months! Stress has had a significant impact on my physical health mainly manifesting itself through a […]
December 23 update – the impact of war and my blog from before the war I didn’t publish
When I last posted a blog article on my Parkinson’s (in June) I had no idea what was the come in the coming months. On the 3rd October I drafted an updated blog – which I thought at the time was interesting – but didn’t hit send. Then the 7th October came and with it war […]
RUNNING & RAISING FOR PARKINSON’S
3 years ago I was diagnosed with PD and I have been walking/running and doing exercise everyday since. I have decided to run a 10k race to raise money for two charities that I respect and that have helped me. One of the two is The TLV Medical Center’s Parkinson’s research unit and the other […]
Update June ’23: staying positive is hard work and takes effort but is worth it
Before I start in earnest the one overwhelming lesson I have learned this period is that being a fool and ignoring all advice from the professionals is a terrible idea…but I will come back to this…. When I came to write this update two fundamental questions crossed my mind…1) Why and 2) What tone to […]
March 2023 – PD…short update…choking, 40 becomes 20 and I really am British
I have started to feel that this blog is a little self-absorbing/self-indulgent and I have debated whether to keep it going, especially with all the other things going on in the country and the world which are all more fundamental. However, based on feedback from others, and the help this has been to me to […]
Parkinson’s – all good but a scare – it really could have been a lot worse…but it isn’t thankfully (TG)
Since I last wrote nearly 6 months ago, things have been good, great in fact, except for a couple of very terror filled weeks which thankfully ended with good news. As always, this is as much for my benefit – as a record of the journey – and therefore I have been and will continue […]
Year 1 of PD – Glass Half Full
I decided to keep a journal of my journey – it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against […]
