FOTB Update 2 – The father is winning against the patient

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I will admit to it. I am excited. Really excited. My daughter is getting married in just 23 days (Please G-d!!!!). And I am happy!

I am happy because she is happy and I am happy because I am happy. It is relatively calm as weddings go, I guess and since what seems to be the end of the Bells Palsy, I have started to feel a little better and calmer now the steroids are over with. My blood pressure has returned to a normative state.

At the moment, the most important thing is that the wedding seems to be genuinely winning the war for attention and mindshare versus the PSP.

It is not the custom here for fathers to be give speeches at the wedding but if I was it would be a belter and I am writing it for my daughter to have for the day anyway.

I was worried (and still have my concerns) about PSP interfering and being a cloud over the wedding for me and others but right here, right now, the wedding is giving me a much-needed boost which I am pleased to share.

I debated with a friend whether I should say this – the danger being that I tempt ‘fate’ etc but he said that releasing the positive energy would be a good thing and I agree with him.

It will not be easy – and there are logistical challenges of being in a wheelchair and the risk of freezing etc but I am praying that happiness and a whole lot of adrenaline will power me through. I also have good friends ready to help and a hotel booked to have a rest before the ceremony.

It is just one day but it is hopefully going to fuel me before, during and afterwards and I am grateful for the boost.

May the wedding continue to beat out the PSP.

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Hello! I am Ben Lazarus

Originally diagnozed with Parkinson’s it has sadly turned into PSP a more aggressive cousin. I am 50 and have recently retired but enough of the sob story – I am a truly blessed person who would not swap with anyone on the planet, principally because I have the best wife and kids in the world (I am of course completely objective :-)). Anyway I am recording via the Blog my journey as therapy to myself, possibly to give a glimpse into my life for others who deal with similar situations and of course those who know me.

Use the QR code or click on it to get a link to the Whatsapp Group that posts updates I hope this is helpful in some way

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