Big and Bold are Beautiful
Parkinson’s and Its Related Diseases: A Disease of ‘Small’. Movement reduces, muscles tighten, face grows less animated, speech is dulled, empathy is reduced, handwriting gets tiny – I could go on. As I walk along the streets, much of the time I remember my Grandma and other adults constantly telling me not to scuff my […]
Laughter is the best medicine…
“Laughter is the Best Medicine” I have always had issues with this phrase… NO MORE. It is true for me anyway, and it is not a question of ‘To laugh ot cry” – it is I guess in an instance where you have an alternative treatment available in the form of a pill, fluid, or […]
PD/PSP- It is a team game, doubles pairing and an individual sport…
I love sport and always have, and as I sat awake this morning, I thought about what type of game I am part of at the moment. Is it a team game, an individual sport, or a doubles match-up? It is all three. If you can bear the analogy for a few minutes, read on. […]
‘Appears to be PSP’ – Actually a positive thing and a call to action
One week into the ‘Appears to be PSP’ diagnosis and I am coming through the denial and grieving stage and am actually seeing it bizarrely as a positive moment. Don’t worry, I am genuinely not insane…please take the time to read and hear me. I must say upfront that I can only talk here in […]
4-4-4 – Learning to Breathe like the Navy SEALs or like me 😀
4-4-4 – Learning to Breathe like the Navy SEALs or like me 😀. What t do I mean by learning to breathe? Let me give some context. Life can be overwhelming. More and more gets put on my shoulders with challenges and tests coming from every direction. Recently, it has felt simply staggering. Health issues […]
AI and Parkinson’s – My hopes for AI
There are many risks and challenges ahead of us from the world of (AI) Artificial Intelligence and it will undoubtedly have a major impact on the lives of our children and their kids. On the positive side, from what I have seen, there is a real chance that AI will bring a massive benefit to […]
YEH – It’s official – My Garmin told me I am actually 2 years younger
I am coming up to 5 years with Parkinson’s, and this morning I received a notification from my Garmin saying I had won back another year and my fitness age had come down to 47.5 instead of the 49.5 I am. I actually didn’t know about this feature – but if my Garmin watch says […]
Vyalev / Produadopa Pump – some upbeat news hopefully
The last few days with cellulitis and a second infection from the Vyalev / Produadopa Pump have not been much fun, but today I learned some interesting information that gives me a lot more hope. I had a really interesting conversation with the local Abbvie patient experience and medical team, and I heard three things […]
Parkinson’s – it is certainly not boring
This disease is popularly known as the ‘Disease is the gift that keeps on taking’…but one thing you can say for sure is that it is not boring. Whatever you plan for, this disease has other plans….fairly constantly. For someone who is a bit of a control freak (my wife and kids would add their […]
“Be positive” The most annoying words but yet the key…my perspective
I have tried to write this 15 times… it is really hard to articulate, but it is something I have an overwhelming desire to talk about. It is something I think about so much and want to get it off my chest – you can choose to read, choose to delete, choose to disagree. It […]
אתה יודע שיש לך בעיית שינה כש…
Sleep and its massive impact on PD
Pills to pump….a big but hopefully really positive step forward
I decided to write this post after an important ‘chance’ encounter this week. Some would call it a coincidence – I would call it divinely inspired – and it is the third or fourth time something similar has happened. Additionally, I want to share a significant change in my treatment that I hope will […]
Fear – A New But Familiar Journey…time To Fight Back
The author discusses their recent struggles with Parkinson’s disease, detailing physical and emotional challenges, but also expressing determination to fight on.
5k at 3am indoors
Ran a slow, monotonous 5k indoors at 3am due to Parkinson’s Disease symptoms. Medication has positive impact but sleep troubles persist. Prefers indoor running over outdoor due to temperature. Striving to continue daily exercise.
PD Silver Lining – yes there is
Is there a silver lining to the diagnosis? I know this is strange to write given my recent blog post about a shorter life expectancy and my general mood at the moment which is less than 100% but this research paper reminded me of an important fact, something I should encourage myself to listen to […]
Life Expectancy With PD – Redoubling my efforts
Life expectancy with PD – latest episode of ‘2 Parkies in a Pod’ addressed the impact of PD on lifespan. Despite the shock, the information fuels determination.
My thoughts on Jeremy Paxman’s statement that “having PD made you wish you’d never been born”
As an end post to the mini awareness project I have been running around the April 11th Worldwide Parkinson’s Awareness Day, I wanted to address what has probably been the most outspoken element of the coverage. The story that garnered probably the most publicity was a quote from the famous British news and TV personality […]
Helping you to start the PD Journey
The ASSERTS2 model is one I have put together to consolidate the advice I have received which may help someone starting out on the PD journey. Being diagnozed with PD is a huge shock to the system and there is no way around it But although the information out there is confusing and sometimes inconsistent […]
Back to running & learning to cope with acute stress
As I describe in another blogsite the last few months have been sheer terror especially as a parent whose son is at war. Today was a major milestone in my fightback as I ran my first 5k for 3 months! Stress has had a significant impact on my physical health mainly manifesting itself through a […]
December 23 update – the impact of war and my blog from before the war I didn’t publish
When I last posted a blog article on my Parkinson’s (in June) I had no idea what was the come in the coming months. On the 3rd October I drafted an updated blog – which I thought at the time was interesting – but didn’t hit send. Then the 7th October came and with it war […]
RUNNING & RAISING FOR PARKINSON’S
3 years ago I was diagnosed with PD and I have been walking/running and doing exercise everyday since. I have decided to run a 10k race to raise money for two charities that I respect and that have helped me. One of the two is The TLV Medical Center’s Parkinson’s research unit and the other […]
March 2023 – PD…short update…choking, 40 becomes 20 and I really am British
I have started to feel that this blog is a little self-absorbing/self-indulgent and I have debated whether to keep it going, especially with all the other things going on in the country and the world which are all more fundamental. However, based on feedback from others, and the help this has been to me to […]
פרקינסון – הכל בסדר! היה מפחיד אבל באמת שיכל להיות הרבה יותר גרוע… אבל זה לא, תודה לאל
מאז שכתבתי בפעם האחרונה לפני כמעט 6 חודשים, הדברים היו טובים, נהדרים למעשה, למעט כמה שבועות מלאי אימה שהסתיימו למרבה המזל עם חדשות טובות. כמו תמיד, מטרת כתיבת הבלוג הזה היא לטובתי האישית – תיעוד של המסע – ולכן הייתי ואמשיך להיות כנה לגבי החוויות שלי. אז כמו תמיד, הדברים החיוביים…וכמה סיפורים מעניינים. באופן כללי […]
Parkinson’s – all good but a scare – it really could have been a lot worse…but it isn’t thankfully (TG)
Since I last wrote nearly 6 months ago, things have been good, great in fact, except for a couple of very terror filled weeks which thankfully ended with good news. As always, this is as much for my benefit – as a record of the journey – and therefore I have been and will continue […]
Year 2 into 3…PD has not been the key thing :-)
It has been many months since I last posted so I thought I would drop a short update, especially as a few people have asked. I will probably regret this because when I say that things are going well, the next day I feel the opposite. So I guess tomorrow won’t be a great day […]
Year 2 – Remain clumsy, some new meds but so far so good
I was not going to write for a while but a number of people have said that my previous post helped them/was interesting so I have decided to keep it up. It is good for me as well – it helps me think and get perspective. Those who don’t want to read….feel free to delete/ignore. […]
Year 1 of PD – Glass Half Full
I decided to keep a journal of my journey – it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against […]
