The Candle, the Disguise, and a One Line Message
Last night contained two moments. One made me smile and gave me some hope that I could rejoin a limited number of communal events again with an ability to cope with the noise, the light, and the presence of lots of people that have been causing me to freeze. The other reminded me, without mercy, […]
Top Five PSP changes to have come from my Diagnosis?
What are the Top Five PSP changes to have come from my Diagnosis? What are the Top Five PSP changes to have come from my Diagnosis? I thought about this question a few moments ago as I sit here at 2 a.m., unable to sleep, and oddly, the list is completely different from what I […]
The North Star and the Fog
Being positive is neither automatic nor easy, it’s a choice I have to make every day. Some people might naturally lean toward optimism or pessimism. I’m definitely the former. But that doesn’t mean positivity comes easily. It takes real work. This blog is one of the ways I keep swimming against the tide. Lately, PSP […]
La Estrella del Norte y la Niebla
Ser positivo no es automático ni fácil, es una elección que tengo que hacer cada día. Hay personas que tienden a ver el vaso medio lleno o medio vacío. Yo soy claramente del primer tipo. Pero eso no significa que sea sencillo. Requiere trabajo real. Este blog es una de las formas en que sigo […]
Shopping for Wheels: Choosing the Right Mobility Aid :-)
Before buying a car (set of wheels :-)), most of us dive into research, looking for speed, style, versatility, looks, that elusive X factor, and of course, price, deals, and features. We each have our individual systems. I’ve always loved speed, but my condition has forced me to slow down. Still, I half-agree with Jeremy […]
Biomarkers – A Game-Changer I Only Met This Weekend!
Last Friday, I posted an overview of my deep dive into my a €35 journey through a research paper on Parkinson’s Disease (PD) and Progressive Supranuclear Palsy-Parkinsonism (PSP-P). I felt proud after hours of reading, AI cross-checks, and some Excel wizardry. Then came an email from a professor in Tel Aviv. He liked the post […]
Now it’s you and me PSP
I have retired from the career that has been much of my focus for a very very long time. I have done so to focus on you PSP. Here are the rules. The focus is absolutely and relentlessly to keep you at bay, to stop, delay, frustrate and slow your march and your progress to […]
Life Begins at Fifty – A Moment of Profound Clarity Just in Time
Life Begins at Fifty…I thought this was a joke until today. I will admit it: I have been coping really badly for the last few weeks with the huge changes in my life. Going from 100 to 0 has been incredibly hard, and it was only today that I gained clarity as I go into […]
