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PSP is hard – genuinely hard. I often wonder whether blogging helps or hinders.
I try to stay positive, but living with PSP is challenging in ways that are hard to put into words. Knowing what lies ahead, knowing your family shares the weight of this journey, and feeling the changes in yourself – both physical and behavioral – can be overwhelming.
Most of the time, I manage. But sometimes, like now, it’s harder. Yesterday I wrote a post with two word games – a word search and a crossword – about PSP terms. Then I thought: what am I doing? If someone sent me a crossword about brain tumors, I’d probably feel unsettled. I even spent $12 creating them. Maybe others felt the same, because I didn’t hear back – there was radio silence.
Yesterday was especially tough because something I had looked forward to for a long time didn’t happen. That was hard.
Blogging has been a lifeline for me – a way to process and cope – but it also takes time and energy, and sometimes feels self-indulgent. My ability to type is getting harder, which doesn’t help. What I write can feel too raw for those close to me, yet the PSP community – and I – value honesty and empathy. Balancing those needs isn’t easy, though I’ve tried.
For now, I’m taking a short break from PSP blogging. I might return with a new approach, keep going as before, or even explore writing a book.
Please bear with me. I just need a little time – maybe the next post is only a few minutes away, or maybe a bit longer.
Don’t worry about me – I remain hopeful and positive and very grateful. At the end of the day, it’s PSP.
