Anyone who knows me knows that I am not particularly prone to giving myself compliments. But my very surprising, and to be honest slightly unsettling, takeaway from a lecture I

In trying to process my anxiety about what is to come – what the future looks like, what comes next anyway – I had a discussion with my sister. We

Oddly enough the subject of Doubt has come up twice in the last 24 hours. A person with another serious neurological illness was feeling, perhaps oddly, a little calmer now

Heavier weights in the gym are easier for me than light ones. It sounds completely backwards, but it is something that has been happening consistently in my physiotherapy sessions. Whether

There is a lot of excitement in the PSP community at the moment about new research, and for once I think some of it is justified. I recently read an

I see the same questions again and again in PSP support groups. Carers trying desperately to understand: Why does my husband or wife want to be alone for long periods?

I increasingly think of life with PSP as a world of countermeasures. There is no cure and currently no treatment that stops or reverses PSP. Yet there are an extraordinary

Boring is boring. Surely there is nothing to write about. Why would I write about nothing? But a night and a day of quiet is actually a headline worth mentioning.

Friday afternoon gives me a chance to pause, reflect on the week and look back over the posts I have published. Individually, they cover very different subjects. Read together, certain

I received an anonymous piece of feedback through the blog today that gave me something I badly needed. The writer is the daughter of a man who had PSP. She